Posted on 14 September 2015.
NMA’s Head of Building Surveying, Tony Young is currently raising money for the ‘Life For Lewis Appeal’ to create a sensory garden for severely disabled local lad Lewis Herbert.
This weekend he completed the ‘Run to the Beat’ 10km run in London finishing in a very respectable 47 minutes.
“A 10k run didn’t sound that bad when I signed up, but as running hasn't been on the top of my agenda recently, it was a bit of a challenge to do it in a respectable time especially considering my running mate and co-fundraiser Charlie is 20 years younger than me!” said Tony.
In November Tony will also be taking part in Men’s Health Magazine ‘Survival of the Fittest’, a 10km assault course with a group of friends (the team has a combined age of 170!).
“We’re fundraising to create a wheelchair accessible multi sensory garden for Lewis with water features, a sound and light arch, musical chimes, wind chimes, mirrors and raised scented flower beds so he can get outside and spend time with his brother and sister instead of having to stay indoors,” explains Tony. “Survival of the Fittest isn’t until the end of November so we will be starting intense training – well, we keep talking about the intense training in the pub on Friday night so that is a start!”
Lewis Herbert was born in 2002 and was diagnosed with West Syndrome aged 3 months. He has now developed a condition called Lennox Gastaut Syndrome, a rare and extremely severe form of epilepsy which causes severe global developmental delay. Lewis can have hundreds of different seizures every day and his condition has so far proved resistant to any medication or therapies.
This severe disability means Lewis requires 24hr care on a daily basis and his parents have had to give up work to look after him. He can’t walk or talk, but enjoys being out of his wheelchair and wriggling about (in his own unique style) on his soft mats.
For more information about Lewis and his proposed sensory garden have a look at his website.